Thursday, April 25, 2013

"We found a spot on her brain"

I am going to have to break down all of these into more than one post, there is so much I have to write about & I want to remember all of it, to share with her one day.

7 weeks ago Kensley wouldn't sleep.
All she would do was cry, back arching, stiffening, blood curdiling screaming. It went on for hours, & I mean hours. It had been happening the last few days but tonight it was different.
I was up all night with her, I remember sitting saying out loud, WHATS WRONG.
I was "this" close to taking her to the ER, but then she finally settled. She then woke up every 20 mins crying but nothing like the 4-5 hours of non-stop, hyper ventlating crying.

I remember when it clicked. She has a ear infection I had told myself.
I had noticed she was grabbing the sides of her head & ears.

Neither girls had ever had a ear infection but I knew the symptoms.

The next morning I made her appt first thing, & asked my friend Alisha to come over & watch Kennedy.
She got there & I told her I would probally be gone half hour tops, I would just get something for her ears.
Boy was I wrong.

We go into the office & I am explaining what has been going on.
She checked her ears & her ears are perfect.
I litterly was taken back, so I just stood thinking well then what is it?
We brain stormed alittle.
& I brought up Kennedys acid reflux.
We check her throat & do a fast test with this probe thing, no reflux.
I stood there seriously confused.
She left the room to do something & that is when Kensley had a "episode" 
It lasted about 15 mins before the Dr came back in & watched her for a little bit.
At this point im crying, something was wrong & I had no clue how to help her.
I couldnt even hold on her, she was stiffening & arching herself away from me.
& then just like that, the room was filled with Drs.

Asking me questions I thought were so irrelvant. 
Throwing out names, name dropping "syndromes"
Asking about her foot {she drags it}
Before I could blink they were putting a urine bag on her, taking her blood & we were off to get x rays & a CT scan.
Everyone was walking on egg shells around me, & all I could do was cry.

We get the breif CT scan results, that cross off the first immediate concerns like meningitis, & they said they would call me with the written results.

The next morning I get the call.

"Hi, how is kensley doing this morning? We noticed that her sinuses were a little swollen so we are calling in a antibiotic to help with that.  {well that explains it, i thought} We also found something else on the scan that we sent over to the pediatric neurologist, I wasn't even going to mention until we heard back from her but wanted to let you know"
"what do you mean something"
"we found a spot on her brain, its small & its very deep in her brain. If it is something to be concerned about the neurologist will have her come in, but no news is good news."

I remember the room spinning for a split second.
& I stayed completely calm.
It WAS nothing. 
This is completely non-tara-behavior.
I called Brandon & let him know.

Right after I hung up with him, I got a call back from the Dr.
The neurologist saw cause for concern & was to come in for a emergency  appt for a MRI.
From the looks of the scan it look like she had, had a stroke....
Read part 2 HERE!


  1. Oh Tara. I seriously wanted to just come over there and give you a hug after reading this. I can't IMAGINE going through this and will be praying that it's really nothing in the end. Hugs for you friend.

  2. Tara you can't stop the story there! Do you have more to tell us, I'm so praying for your little family and that she's okay!

  3. Crying here. I am praying for you and your family. xoxoxoxoxo

    Erica Dee

  4. Oh my gosh Tara. I'm sitting here crying, thinking of you all. I am so, so sorry. I cannot imagine what this feels like for you. <3 Thinking of you guys, hoping everything will be perfectly fine

  5. Tara!!!!! Oh my god my heart is breaking!!!

  6. I am so sorry. Preying for all of you.


shucks, thanks the comment!
i looove hearing from you!
-tara :)


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